It never occurred to me that I had any sway in my mom’s medical treatment until recently after about 3 years of pretty serious caregiving. It was only after things started getting so complex that stuff was starting to not work that I realized that even in that department I was now the responsible adult who needed to drive appointments, bring up things that needed to be addressed, and kind of have a vision for what “good enough” could look like.
One bit of advice - see if you can make sure you get respite care ie, mom stays for a week at an assisted living facility / nursing facility or even better go through a few in-home care folks who could help out and find one you like.
An issue is caregivers burning out. It's work that normally grows, so even if you don't think you need it, having the paperwork done for assisted / nursing so if needed Mom can spend a week there or having a relationship with in-home care so you can take a few days if needed can really make a big difference.
Also, if you get sick, there's a safety net for mom.
That is excellent advice thank you. I’d been putting off expanding the “team” so to speak for awhile but you’re 100% correct. Aside from burning out, I’m the single point of failure right now.
