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Exactly with mine. The first times I had these I don't remember them, but the people around me did. Where I'd just tell them to hold on before I could understand them again. Took until I was getting them daily where the hit of the seizure was enough to be noticeable.

Temporal lobe seizures are interesting too because for me, it was just the word issues. I had one while riding a bike when I still didn't know what was going on, and I kept going being actively confused, like I knew something odd was going on with the word / thinking part of my brain, but nothing at all physical.



I was having 10-30 a day for a while near the end there. Fortunately, my auras aren't very disruptive. No memory loss, no physical, emotional, or behavioral manifestations. I simply lose the ability to speak or understand language. It's a different story if they spread or generalize though.

After I started medication, I continued to have seizures for a year, including one grand mal. Unfortunately, I was in the unlucky 30% group that doesn't respond to medication. I tried 2 drugs total, even at high doses.

All of the sudden, I stopped having them for 2 years. I got my confidence back. I could do anything - drink, drive (not at the same time lol), not sleep, handle stress. Nothing really phased me, I figured I was "cured". I took a minimal amount of medicine with no issues. Epilepsy can spontaneously go into remission for a lot of people.

Then one day, I had an aura, and just like that, it started up again. Daily auras and one grand mal. A higher dose of medicine did nothing. A year later, they suddenly went away again with no changes to lifestyle or medication.

I'm so confused why this is happening. No one can tell me. Normal brain scans (no tumors or other abnormalities thank god), abnormal but somewhat inconclusive EEG in regards to where they may be coming from. One pointed to left temporal lobe, another was somewhat inconclusive. No, they're not psychogenic.

Anyway, there are some really smart people doing epilepsy research, particularly with regards to cryptogenic focal epilepsy. I'm looking forward to the advances they'll make. Now, you can do minimally-invasive brain surgery via laser ablation which is pretty neat. I haven't gotten the full work-up for surgery, but I'm probably not a candidate since they don't like to operate on any part of the brain that has to do with language. I want to wait until some more research comes out. The autoimmune avenue looks possibly promising. They're doing a lot of genetics research as well. TBD.




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