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Ask HN: Privacy Respecting DNA Sequencing?
4 points by pimpampum on Jan 19, 2020 | hide | past | favorite | 3 comments
I want to sequence my DNA and get the results. But i do not want a company to keep a copy of it. Even if it assures me it will not share it, sell it or it will keep the data "anonymized". I want them to sequence it, give it and delete it. After all I'm paying for it. Extra points if i can be sure of it, like doing it at home, which I suspect we are still far away from that.


All of the major companies essentially use Illumina hardware, you can find private labs that will extract your raw data, but what do you plan to do with it?

Without the data sets of Ancestry, 23andme, etc. the raw data isn't very useful for most consumers.


I can search for specific genes on it i don't care about ancestry.


If you're looking for medical testing you're better off getting specific tests for what you're looking for.

As you have no guarantees that you won't get errors or no-reads on the SNP you care about and you won't get the QA process the consumer companies have.

If you've got specific medical concerns would strongly recommend you speak to a professional medical genealogist, as it's super easy to misinterpret data unless you've got a background in this space.




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