Ask them how they feel about having their names and the names of the people they hire attached to queries of PHI in aggregated health information repositories, and whether those people have had the level of background checks that public service staff who typically do this have had. Then ask them whether they will bear any accountability for losing the data they are entrusted with, have their REB decisions subject to freedom of information, or be subject to consent directives by patients, and why they engage big-N consulting firms to misrepresent system design on their behalf. Then ask them whether the research is restricted to clinicial and biological research, or if their "research" includes providing data people in the social sciences.
Technically, they are building models to publish or perish, establish data feifs in their institutions for attracting grant money, and to support policy objectives for the revolving door between gov and academia and some troubling third party NGOs, with "care," being a distant abstraction.
The academics I encountered doing privacy work for PHI data sets seemed to be interested in everything except responsibility and stewardship. My care indeed.
Technically, they are building models to publish or perish, establish data feifs in their institutions for attracting grant money, and to support policy objectives for the revolving door between gov and academia and some troubling third party NGOs, with "care," being a distant abstraction.
The academics I encountered doing privacy work for PHI data sets seemed to be interested in everything except responsibility and stewardship. My care indeed.