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Thanks for sharing your experience- I hope you continue recovering and improving.

I live in a high tick area as well. Did you notice any symptoms before the eyesight?

I had a few bites but since the rashes went away my doc said no need for antibiotics unless rashes come back or I get flu like symptoms, etc.




Thanks. To answer your question: well, I kept sleeping too much at first. But I live a very sequestered life lately, so I had little frame of reference. Looking back, one of the most surreal things is that I recall telling my friends on the phone that I was having a hard time telling dreams from reality. It wasn't until after the diagnosis that I looked this up and found out that this was a symptom of Advanced Neurological Lyme Disease. WTF.

Then I got joint pain, then the really weird eyesight loss, in short order.

What I would recommend is getting the antibody tests if you have any concern. I am in the EU, so that was very cheap w/o insurance. I believe in The States they recommend prophylactic Doxycycline, at any concern, instead of testing because testing $.

Prophylactic Doxycycline is a couple pills. Since I missed that, Advanced Neuro Lyme was 30 days of 2 high-dose pills a day. In the USA, they require IV antibiotics for Advanced Neuro.

This dumb crap changed my life, so again I would ask, or demand testing for ELISA. If that comes back positive, then there will be a different "Western blot" confirmation blood test. If they say no, then find a local clinic and pay for the ELISA yourself.

https://www.mountsinai.org/health-library/tests/lyme-disease...

https://www.walkinlab.com/blog/accurate-test-lyme-disease/ ($120 for the first test, if positive then $150 confirmation)




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